Honoring Courage, Caregiving,
and Healthy Love/Healthy Grief
Memoir Coming June 2026:
Dancing in the Face of Death
Susan Koen, Ph.D., is a psychologist, author, and speaker whose work explores the profound terrains of love, death, courage, and human connection. For decades, she served as a researcher and management consultant, helping individuals and organizations understand circadian rhythms and the neuroscience behind human errors and safety lapses at work.
Her life and career took a transformative turn when her beloved partner of forty years was diagnosed with a genetic brain disorder, the GRN version of Frontotemporal Dementia (FTD) known clinically as bvFTD. As Susan became her primary caregiver, she entered a chapter marked by advocacy, tenderness, humor, and the emotional complexity of witnessing someone you love slowly disappear.
About The Author
About the Book
Dancing in the Face of Death: A Story of Love, Caregiving, and Courage Amid a Dementia Diagnosis is a tender memoir about devotion, resilience, and the steady choice to remain close as Frontotemporal Dementia (FTD) changes everything. Through the lens of a decades-long lesbian partnership tested by illness, Dr. Susan Koen explores healthy grief, personal agency, and death with dignity—offering insight and solace to others navigating a similar journey.
Expected release: June 2, 2026.